A Mother's Hope for a Child

Music is something that helps me every day.  While in the hospital with Max, I heard a song from Rachel Platten, "Better Place"......

Shortly after diagnosis Last night a few people sent me messages and the Krabbe community was buzzing on social media about a child bein...

My heart is aching.  My emotions are high. Max had a really good weekend and a good Monday and Tuesday.  I typically get up each morning b...

I was running errands the other day and the song "Warriors" by the band Imagine Dragons came on. This song has been used at  sport...

This disease is devastating. I got in the car yesterday and looked at Max through my mirror - his eyes were staring off in the distance...th...

"I've heard it said  that people come into our lives for a reason,  bringing something we must learn, and we are led to thos...

We've been fulfilling so many fun things on Max's bucket list and I got a message from a huge Krabbe advocate who has created the Te...